We are aware of patients who were told by their neurologist that
they had ALS. They were also told that there is no treatment
for this. However they did not consider that CIDP can also cause
both central and peripheral lesions. So CIDP can mimic ALS symptoms.
Treatment with IVIG has brought these patients back on their feet.
Depending upon the time it takes from
initial weakness and onset of the case to a most serve point of
paralysis is just one of the factors which aid in the eventual
distinguishing between these diseases.
Guillain-Barre Syndrome (GBS) is
considered the short-term, or an acute variant. From the beginning
of the disease and it's initial weakness or fatigue to the eventual
complete paralysis of one's body most likely takes place within a
matter of hours or just a few days. GBS routinely leads to a
complete paralysis throughout the peripheral nerves and may also
lead to use of a ventilator to aid in breathing for the most severe
cases. The prognosis for GBS is promising, with many patients left
with minimal numbness or tingling as it's only physical scar.
Chronic Inflammatory Demyelinating
Polyneuropathy (CIDP) is a long-term condition, coming on over a long
period of time, within several weeks or even months in some cases.
Use of a ventilator is not needed in as many CIDP cases, but the
prognosis is also not as promising. CIDP victims may be left with
long-term weakness or even permanent paralysis.
It is important to keep in mind there
are also many in-between variations off GBS and CIDP. Some many
experience reoccurring setbacks, others may have only minimal
weakness of tingling as the whole disease course. It takes not only
the knowledge coming from the medically trained to fight this
disease but also the support of family, friends, and a positive
personal attitude to deal with these diseases, no matter what the
ultimate prognosis may be.
This web site is out to provide not
only the facts from the medical field about these diseases but also
from the people that know first hand what the disease has done to
both them and their lives. Take look around, following the links
below of some of your most asked questions in order to provide you
with links to what the Internet has to offer and the support groups
we have found most helpful.